Annabelle’s Amazing Graces Benefit - Thank You!!

A message from Shelley and Daniel van Deursen:

I just wanted to say THANK YOU so much to every single person that donated to, sponsored, signed up, and supported Annabelle and our family! You are making a huge difference in the rare disease world and we could never be so successful without you.

We loved seeing old and new faces this year and we pray we can continue to grow and fund GNAO1 research with your help. We are currently the biggest fundraiser for GNAO1 research in the WORLD! That’s amazing! We can never thank you enough for being so generous and giving us the opportunity to fund this great research to help our Annabelle and other children in the world 💜🩵

We get to write a check for $125,000 to GNAO1 research!!!!!! 🙏🏼💜🤩🩵🥳

THANK YOU FOR MAKING THAT POSSIBLE!

Recently there have been several children with the GNAO1 mutation who have died and it hurts our community so badly each time. Each one of y’all gives us hope for Annabelle, our family, and her future. We will continue praying and fighting for her life and for a breakthrough in research to help give her and other children with this mutation the best possible life 💖

We are blessed with each of you and a wonderful community, and we hope you can join us next year for our 7th annual Annabelle’s Benefit on April 5, 2025!

God Bless,

Shelley and Daniel van Deursen